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EWG student focuses on Cystic Fibrosis

October 28, 2010

EXETER – Over 30,000 children and adults are affected by cystic fibrosis (CF) in this country. CF is an inherited, chronic disease that affects the lungs and digestive system. One Exeter-West Greenwich High School senior has devoted her entire senior project on CF awareness and will be following a three year-old girl in her fight against the disease. As part of her project, Sequin Del Tufo has organized a 5K walk/run on Nov. 14 at Goddard Park, East Greenwich, to help make strides in CF research. The walk is in honor of three year-old Skye Messineo, of Richmond, who was born with the disease and, unfortunately, isn’t doing well. She’s gone deaf, has severe asthma, allergies, sleep apnea, MRSA in her lungs, liver disease and a heart murmur. “At first, I was going to do my project on breast cancer awareness and participate in a three day walk, but my grandmother did a CF walk during the summer and met Skye. When I was introduced to her, I fell in love. She’s a beautiful little girl who always smiles. I knew I wanted to learn about this disease and help bring awareness for Skye,” said Del Tufo. Del Tufo has formed a bond with Skye and recently attended her birthday party. Skye has begun learning sign language and is able to sign Del Tufo’s name. Throughout the next year, Del Tufo will be working on a scrap book that she’ll present to judges on her presentation day. She’ll then give it to Skye. “I knew nothing about this disease and I decided to do a walk/run because it would bring a large number of people together to learn and find ways they can help,” she said. The event is rain or shine and registration is at 8:30 a.m. at the carousel and the walk begins at 9 a.m. The cost is a $15 donation and leashed pets are welcomed. If you want to make a donation please visit www.cff.org.

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